Understanding Personal Identity Beyond Diagnosis: What It Means To Be Truly Seen

When someone receives a diagnosis, it often becomes the lens through which others view them. Yet, a diagnosis is only one part of a person’s story. To be truly seen means recognizing the whole individual—their experiences, values, strengths, and dreams—not just the label attached to their condition. This post explores what it means to see people beyond their diagnosis, drawing lessons from those we serve and offering practical ways to foster deeper understanding.

Recognizing the whole person beyond diagnosis

Why Diagnosis Alone Falls Short

A diagnosis provides important information about a person’s health or challenges, but it does not capture their identity. When people are defined primarily by their diagnosis, it can lead to:

• Stereotyping: Assuming all individuals with the same diagnosis share the same traits or limitations.

• Overlooking strengths: Ignoring talents, interests, and achievements unrelated to the diagnosis.

• Reducing individuality: Treating people as a category rather than unique human beings.

  
  

For example, someone diagnosed with autism may be seen only through the lens of their condition, missing their creativity, humor, or professional skills. Similarly, a person with a mental health diagnosis might be viewed as fragile or incapable, overshadowing their resilience and aspirations.

Lessons from Individuals We Serve

People often express the desire to be understood as more than their diagnosis. Here are some key lessons learned from listening to their stories:

1. Identity is Multifaceted

Everyone has multiple roles and identities—family member, friend, artist, worker, learner. These roles shape how they see themselves and want to be seen. Focusing solely on diagnosis ignores these layers.

2. Personal Narratives Matter

Encouraging individuals to share their stories helps reveal their values, hopes, and challenges beyond medical terms. These narratives foster empathy and connection.

3. Respect and Dignity Are Essential

Being truly seen means treating people with respect, honoring their choices, and acknowledging their autonomy. This builds trust and supports empowerment.

4. Strengths-Based Approach Works

Highlighting what individuals can do rather than what they cannot shifts the focus to potential and growth. It also promotes positive self-esteem.

How to See People Beyond Their Diagnosis

Here are practical ways to apply these lessons in everyday interactions and professional settings:

Listen Actively and Openly

• Give people space to express themselves without interruption.

• Ask open-ended questions about their interests, goals, and experiences.

• Avoid making assumptions based on diagnosis alone.

  
  

Use Person-First Language

• Say “person with diabetes” instead of “diabetic.”

• This subtle change emphasizes the individual first, not the condition.

  
  

Recognize Individual Preferences

• Some may want to talk about their diagnosis; others may not.

• Respect their choice and follow their lead in conversations.

  
  

Focus on Strengths and Interests

• Identify and encourage talents, hobbies, and skills.

• Support opportunities for growth in areas they enjoy.

  
  

Build Relationships Based on Trust

• Consistency, honesty, and respect help create safe environments.

• Trust allows people to reveal more of their true selves.

  
  

Real-Life Example: Seeing Beyond Labels

Consider a young woman named Maria who has a physical disability. Early in her care, professionals focused mainly on her mobility challenges. Over time, by listening to her stories and interests, they discovered her passion for painting and storytelling. Supporting these interests helped Maria build confidence and connect with others. She was no longer seen just as a person with a disability but as a creative individual with unique gifts.

Why It Matters

When people feel truly seen, they experience:

• Increased self-worth: Feeling valued for who they are.

• Better relationships: Deeper connections with family, friends, and caregivers.

• Improved outcomes: Engagement and motivation in personal growth and care.

  
  

Seeing beyond diagnosis is not just compassionate; it leads to better support and richer human connections.